Melanie was able to leave the hospital today. Not just an hour drive, but she is now staying with Greg and Charise for a week. It is going to be a very Merry Christmas indeed! She will start round two of chemo on the 28th. Until then, she is feeling great not having to be attached to shithead and having nurses poke and prod. We will post and add some pictures tonight!
A very HAPPY day!!!!
Sunday, December 20, 2009
Saturday, December 19, 2009
Christmas Skype
So Melanie had quite a busy day today. She had quite a few visitors which she loved. She was also allowed out for about an hour today. My mom and dad took her for a drive. It was nice for her to get out for a bit. Hopefully in the next couple days they will know if she can leave and go to Greg's for a couple days.
Also today, Greg and some of his friends came up and sang for Melanie. I wasn't able to get many details as Mel is asleep. So I will have her post some pics tomorrow.
Tonight was our Perkes Christmas party. Uncle David set up Skype on his laptop so that everyone could see and talk to Mel. Isn't technology great! I think it was fun for everyone as well to be able to talk and wish Melanie well. She was missed at the party, but that was the next best thing.
Sorry not much of an update. We will know more after they have a chance to see her blood counts tomorrow. As usual, we will keep you all posted. :) Thanks again to everyone and all your thoughts and prayers!
Sleep well my sister! Love you!
Also today, Greg and some of his friends came up and sang for Melanie. I wasn't able to get many details as Mel is asleep. So I will have her post some pics tomorrow.
Tonight was our Perkes Christmas party. Uncle David set up Skype on his laptop so that everyone could see and talk to Mel. Isn't technology great! I think it was fun for everyone as well to be able to talk and wish Melanie well. She was missed at the party, but that was the next best thing.
Sorry not much of an update. We will know more after they have a chance to see her blood counts tomorrow. As usual, we will keep you all posted. :) Thanks again to everyone and all your thoughts and prayers!
Sleep well my sister! Love you!
Friday, December 18, 2009
Tender Mercies
Melanie had her lumbar today. So she has been poked and prodded pretty darn good the last couple days. She is feeling pretty tired and has had a chemo headache. But it all went well. She is just a trooper. She was going to do the post tonight but is pretty beat. So, I just typed for her. Below is her post. :)
(Posted by Melanie)
Bone marrow is juicy and looks good! So things are considered to be in remission at the moment. Which means the leukemia is clear but there is still work to do to ensure it doesn't come back. My platelets are finally in the normal range. They were 178,000 today. The red blood cells are winning the fight over the white blood cells still. So we are still waiting on nuetraphils. In all this means that I will be able to spend a few days at Greg's if those nuetraphils come. I should know in the next couples days when that might be. Th second round of chemo should start around Dec 28th. They should know about donors by Monday or Tuesday.
Thanks so much for your prayers, cards and everything else. Some of you have mentioned that you were unsure that I know who you are, I do. :) Keep the prayers a comin. Thanks so much to you all.
Love,
Melanie
(Posted by Melanie)
Bone marrow is juicy and looks good! So things are considered to be in remission at the moment. Which means the leukemia is clear but there is still work to do to ensure it doesn't come back. My platelets are finally in the normal range. They were 178,000 today. The red blood cells are winning the fight over the white blood cells still. So we are still waiting on nuetraphils. In all this means that I will be able to spend a few days at Greg's if those nuetraphils come. I should know in the next couples days when that might be. Th second round of chemo should start around Dec 28th. They should know about donors by Monday or Tuesday.
Thanks so much for your prayers, cards and everything else. Some of you have mentioned that you were unsure that I know who you are, I do. :) Keep the prayers a comin. Thanks so much to you all.
Love,
Melanie
Thursday, December 17, 2009
Bone marrow biopsy
Wow, I knew my sister was strong, but watching her today, I realized just how much. The biopsy was pretty painful. Melanie was so brave! I was with her when she had it. She held her worry stones tight. I watched as they did several shots to numb her and then use this devise to bore through her bone to draw out some marrow and a piece of her bone. I felt so sorry for her. It was quite an ordeal. I could tell that there were some really painful moments. She did GREAT though! As you can imagine she was pretty tired and spent after that. She is so very thankful for everyone's thoughts and prayers. I know all the words of encouragement go a long way. So we should we know tomorrow what the next phase of her journey will be. We will keep you all posted.
Her counts are continuing to go up. Her platelets were at 142,000 (8,000 below normal), and she had 300 neutraphils. That is some good news. The doctors are pleased with how the numbers are going. Keep it up Mel!
Get some sleep my dear sister........ You are so brave & inspiring! Keep up your fight! We are all behind you! I love you!
Her counts are continuing to go up. Her platelets were at 142,000 (8,000 below normal), and she had 300 neutraphils. That is some good news. The doctors are pleased with how the numbers are going. Keep it up Mel!
Get some sleep my dear sister........ You are so brave & inspiring! Keep up your fight! We are all behind you! I love you!
Wednesday, December 16, 2009
Patience is a virtue
Another day of waiting.... But tomorrow will be the test. The bone marrow biopsy. The results will tell what the next step in this adventure will be. We probably won't know anything until Friday though. We will keep you all posted.
Melanie is feeling okay today. No code blue's on the floor! Yahoo! She even tried on her new Pearl Izumi shoes to walk in tonight. She has not worn shoes for a good couple months. She is still staying strong and trying to have patience. The nights can just be sooooo long and drawn out. Thank goodness for Adavan (not sure how to spell that. haha)
Here are a couple pictures from the day. One is with her nurse Dasha. Mel was in the middle of her walk and had to come back so Dasha could scan her ID band. So she had her face mask on top of her head so she could breath. She looked kinda like a "conehead". We have to find humor in whatever we can these days. :) The other is a picture of one her cool hats that she has been given by her friend Diana Hatfield. I just love it!!!


I love you Melanie! Sweet dreams.....
Here are a couple pictures from the day. One is with her nurse Dasha. Mel was in the middle of her walk and had to come back so Dasha could scan her ID band. So she had her face mask on top of her head so she could breath. She looked kinda like a "conehead". We have to find humor in whatever we can these days. :) The other is a picture of one her cool hats that she has been given by her friend Diana Hatfield. I just love it!!!
Well, thanks again to you all! Melanie, Kaden and our family have the best friends and family anyone could ever have!
I love you Melanie! Sweet dreams.....
Tuesday, December 15, 2009
A Low- Key Day
So today was a low-key day, as Melanie put it. My mom spent most of the day at Greg's, wrapping Christmas presents and then doing some shopping. Kim and Melanie watched some movies, went for walks, and just chilled. It was a bit of an emotional day as well. I guess that there was a code blue on the floor in the morning. The person ended out alright, but it was kind of scary with all the running around and noise going on outside Mel's room. Code blue is not a great thing to hear in the hospital.
Today Melanie's platelets were up. The doctors said this was a good sign for positive things going on in the bone marrow. She will have the bone marrow biopsy on Thursday. Depending on how it turns out, they will either go right into her next round of chemo (consolidation chemo), or wait for her counts to come up some more. As my mom put it tonight, "It is all a waiting game and patience."
Today Melanie's platelets were up. The doctors said this was a good sign for positive things going on in the bone marrow. She will have the bone marrow biopsy on Thursday. Depending on how it turns out, they will either go right into her next round of chemo (consolidation chemo), or wait for her counts to come up some more. As my mom put it tonight, "It is all a waiting game and patience."
Patience is a great virtue that we are all learning to acquire.
Sweetest of dreams, Melanie! Thursday we can dream of a "White Christmas". Love you!
Monday, December 14, 2009
Grandma got ran over by a rainbow?!?!?
Kim here, back in Utah and so glad I can be. Being Mel's big sister, it has been so hard to be so far away. I am so thankful to Joanie for taking care of things in Colorado (especially the cats) so that I can be here. All my friends in Colorado who have been so supportive and wishing the best for my family. Also to my work for letting me be away and being so understanding.
Another day of waiting. Mel's platelets were up to 74,000 (they were 56,000 yesterday) but no darn neutraphils.... The doctor came in today and said that they will do the bone marrow test on Thursday. They will then be able to decide what they want to do next. We hope that the leukemia cells are no where to be found....
She has done pretty good today. Did some walking and breathing exercises and all in all it was good. The waiting game is such a hard thing. Mel is staying strong and is so thankful for all the support and wonderful friends and family. It has been just overwhelming.
Mel's friend Jan Triplett came to visit her today. They had a great visit. She brought Mel some new music and brought Kaden a special gift that will just bring him some fun in these rough times. She also Skyped with Angie, Steve, and their kids (Chase, Brooke, & Austin). It was great for Melanie to be able to do that. She is such a great aunt and it has been hard for not to be able to see her nieces and nephews. So it was a great treat for her.
As you can see from the title, we had some good laughs today. Mom is soooooo funny sometimes. She meant to say "Grandma got ran over by a reindeer". You probably had to be there, but we were laughing pretty good today. It is so good to see Mel's smile and hear her laugh! Gotta love those good days!
Hope you sleep well sweet Melanie. I love you so much!!
Sunday, December 13, 2009
A Wonderful Sabbath Day
Melanie had another great day! She did have some nausea and was really tired, but she always has a positive attitude. She seemed to have a good night, just the usual night sweats. The nurse gave her a full dose of anti- nausea medicine and it knocked her out pretty quick.
The doctor came in and talked to us. They have such good doctors taking care of Mel...what a blessing. Her Neutrophils went down to 200, we were pretty bummed but the doctor said it is normal and to not worry. They are hoping to do Melanie's bone marrow test on Wed. or Thurs. We are praying that there will be an absence of Leukemia cells.
Mel had lots of visitors today. Her home teacher Mark Daines and his wife Judy came, Aunt Eva came as well as Grandpa and Grandma Perkes (maternal grandparents). Later in the day she had a visit from Liz and Rich Mitchell (Angie's brother and sister in-law) who brought her Holiday Inn...a huge favorite of Mel's. She also was visited by Alean and Diana who she worked with at Providence Elementary. Mel enjoys the visits, especially on her good days. She was in such good spirits today.
There have been several donations to Mel's charitable account. We can't begin to express the gratitude we feel. There are tears of joy every day because of the many generous people who we feel lucky to call friends and family. Thank you from our whole family...are hearts are full to bursting!
Here are a few pictures from today.
Melanie showing off her delicious pie cakes from Grandma Perkes. Right before I took this pic Mel said, "I get more than one". Our cousins will know what she means by that. ;)
A basket of goodies from Uncle David and Aunt Cindy. It was full of some yummy treats and snacks...Mel was really excited to get this! She has had a huge sweet tooth lately.
Keep smiling Mel, it lights up the room!
The doctor came in and talked to us. They have such good doctors taking care of Mel...what a blessing. Her Neutrophils went down to 200, we were pretty bummed but the doctor said it is normal and to not worry. They are hoping to do Melanie's bone marrow test on Wed. or Thurs. We are praying that there will be an absence of Leukemia cells.
Mel had lots of visitors today. Her home teacher Mark Daines and his wife Judy came, Aunt Eva came as well as Grandpa and Grandma Perkes (maternal grandparents). Later in the day she had a visit from Liz and Rich Mitchell (Angie's brother and sister in-law) who brought her Holiday Inn...a huge favorite of Mel's. She also was visited by Alean and Diana who she worked with at Providence Elementary. Mel enjoys the visits, especially on her good days. She was in such good spirits today.
There have been several donations to Mel's charitable account. We can't begin to express the gratitude we feel. There are tears of joy every day because of the many generous people who we feel lucky to call friends and family. Thank you from our whole family...are hearts are full to bursting!
Here are a few pictures from today.
Melanie showing off her delicious pie cakes from Grandma Perkes. Right before I took this pic Mel said, "I get more than one". Our cousins will know what she means by that. ;)Keep smiling Mel, it lights up the room!
Saturday, December 12, 2009
Changing of the Guard
Our mom and dad are having a night out and I get to stay here with Melanie tonight. My dad and I rode down with grandpa and grandma Perkes to Salt Lake. We had a white knuckle drive. The snow was really coming down and the wind was blowing. Thank goodness for four wheel drive. We made it here safe and sound.
One of the card walls in Mel's room. She loves to read every one's cards, they really boost her spirits.
Melanie and I on one of our walks. We enjoyed serenading the nurses with Christmas songs.
Mel was really tired when I first got here and so she took a nap. She got some good news today about her Neutrophils...they are up to 300! That is some really good news.
Mel and I have had a fun time together. We watched a few episodes of The Mary Tyler Moore Show, went through Mel's mail, walked the halls together, sang Christmas songs, talked a lot, laughed, watched The Parent Trap and I gave Mel a massage. Melanie added a gratitude list on the side bar of this blog where she will add things that she is grateful for. She tires really easily and after going through her mail and going on walks, she was really wiped out.
I brought Melanie a wig to try out and it looks awesome!! It looks so much like her real hair. It is like it was made just for her. Thank you to Jocelyn from AZ for donating the wig to Mel. It was fun for Mel to look in the mirror and see cute hair in her reflection.
I took some pictures today...enjoy. :)
Friday, December 11, 2009
Chemo Blah
I was able to finally go up and spend some more time with Melanie. She was feeling nauseated this morning. She has noticed that 6-7 days after getting chemo in her central line, she feels yucky. They gave her some great anti-nausea medicine that helped! She was even able to get up and walk around the halls a bit today. I shouldn't say halls. It is actually one hall that she goes up and back down on.
Just a little story for us to remember in the future: Today Melanie was trying to decide what to eat for lunch. She has had the same options for 29 days now, and is pretty sick of it. My mom and I decided we would go to Paradise Cafe and get her a sandwich and soup. It sounded yummy to Melanie! Melanie is on a low microbe diet, so we explained very detailed to the boy taking our order that we didn't want lettuce or tomato. We also asked him to use some of the meat that is still in the cooler, instead of the stuff that has been sitting out. He was great, and I watched him fill out the order correctly. Too bad he wasn't the one making the sandwich. We made it back to the hospital and were so excited to eat our yummy sandwiches. However, Melanie's had tomato and lettuce!! Now she wasn't going to be able to even eat it. I am not one to complain very often, but I called them and told them how mad we were. At least we had some soup for Melanie to eat, and we got it all for free (granted that they really do credit my card back).
I made sure to bring my camera today, so I could take a couple pictures of Melanie's smile.
This is one of the nurses that takes good care of her. Her name is Shawnna. My mom and Melanie really like her, because she is so on top of it and always gets what Melanie needs promptly.
Just a little story for us to remember in the future: Today Melanie was trying to decide what to eat for lunch. She has had the same options for 29 days now, and is pretty sick of it. My mom and I decided we would go to Paradise Cafe and get her a sandwich and soup. It sounded yummy to Melanie! Melanie is on a low microbe diet, so we explained very detailed to the boy taking our order that we didn't want lettuce or tomato. We also asked him to use some of the meat that is still in the cooler, instead of the stuff that has been sitting out. He was great, and I watched him fill out the order correctly. Too bad he wasn't the one making the sandwich. We made it back to the hospital and were so excited to eat our yummy sandwiches. However, Melanie's had tomato and lettuce!! Now she wasn't going to be able to even eat it. I am not one to complain very often, but I called them and told them how mad we were. At least we had some soup for Melanie to eat, and we got it all for free (granted that they really do credit my card back).
I made sure to bring my camera today, so I could take a couple pictures of Melanie's smile.
We had a great visit, with a bit of laughter! Melanie and I especially liked to tease my mom when she talked about "Subway for Santa"! Ha Ha...we love you mom!
Melanie wanted me to tell everyone that she is so grateful for all the help in moving her. Mike...you are the man!! A big thank you today to Cami, aunt Eva, cousin Jen, Kristie Theurer (a student's mother), Stephanie and her mother Jan, and cousin Preston and his wife Natalie. They are getting closer to being done, and then that weight can be lifted.
Melanie just called me, while I was writing this post. Please remember Kaden in your prayers. He is having a hard time right now, and really misses Melanie being with him. It is hard for Melanie to hear his tears and not be able to comfort him. It is a long road ahead, but they will make it through and be stronger on the other side.
Thursday, December 10, 2009
Day 27
Melanie had a good day...we really like those! Our mom was able to leave for several hours to do some Christmas shopping and to shower and get some laundry done. She was gone for most of the day which I'm sure was a nice break for her. Mel had a visitor from her ward, Janet Benson. Other than that, it was a quiet day. Mel continues to have cold sweats at night and is not getting a lot of sleep because of them. She is catching some sleep whenever she can. Her blood levels are holding pretty steady, but we are still hoping and praying that the Neutrophils will get higher so we can't give her a break from the hospital.
Here in Cache Valley, we have been working on getting Mel moved. A HUGE thank you to the Elder's Quorum in her ward!!!!!! They helped Mike in packing two trailers full and taking it to a storage unit tonight. Your help was heaven sent...we can't thank you enough! I am so grateful for all of you who have left a comment saying that you are willing to help. Stephanie (Mel's sister in-law) and I will be at Mel's place tomorrow at 1 pm to finish boxing up and start cleaning. If any of you can make it, we would love your help! If you don't know where she lives, call me at 435-770-0432. We will be there for a few hours. Even if you only have a short amount of time, we will still welcome you! :)
Here in Cache Valley, we have been working on getting Mel moved. A HUGE thank you to the Elder's Quorum in her ward!!!!!! They helped Mike in packing two trailers full and taking it to a storage unit tonight. Your help was heaven sent...we can't thank you enough! I am so grateful for all of you who have left a comment saying that you are willing to help. Stephanie (Mel's sister in-law) and I will be at Mel's place tomorrow at 1 pm to finish boxing up and start cleaning. If any of you can make it, we would love your help! If you don't know where she lives, call me at 435-770-0432. We will be there for a few hours. Even if you only have a short amount of time, we will still welcome you! :)
Wednesday, December 9, 2009
Do We Have a Match?
I spoke with Melanie this evening, and she informed me that they have 2 of the possible donor's blood samples in. I guess they get current blood samples from the possible donors, and recheck them. Another sample is suppose to be in later this week or next. So, we should know about a match in a week or so! We are praying that one of them is still a match for her. Also, a prayer for the wonderful strangers who are willing to give their stem cells for Melanie!!
Melanie sounded pretty upbeat today. She was kind of tired and explained that she hasn't been sleeping very good at night. She is up all night with cold sweats. This Friday is day 29, and was going to be the big LP and bone marrow biopsy. I guess they are going to postpone it until next Friday, or until all of her counts are up. If they take the biopsy when her counts are down, they will most likely just have to do it again.
Melanie's aunt Lana came and visited her today. She brought some lunch, which is always so much better than hospital food. Mel said they had a nice visit. We are blessed with an amazing and supportive family! Cami mentioned the visitor she had yesterday, and I got some more details about it. Janet Blad, who is a mother of some of Melanie's students brought a lap blanket she had crocheted, and also a scarf for my mother. She also brought along a package from the Gunnell family that had a Christmas CD and something extra special. One of Mel's students named Avery Gunnell sent her nativity set down for Melanie to have. How sweet is that? Melanie has such amazing students and parents that she works with!
I wanted to mention a bit about what is going on up in Logan. My aunt Eva and Cami went over to my parent's house today and set up a Christmas tree and some decorations for my dad. Thank you, Eva! Also, Cami, Mike, Stephanie, and my dad are in the process of trying to pack up all of Melanie's things from her apartment and get them in storage or my parent's house. Since they are not being good about asking for help, I am asking for them. If you live in the area and would be willing to box some things up, or clean a little, or anything, it would be so appreciated! Everyone has been doing so much already, it is hard to ask, but I know they could really use the help.
Thank you, once again for all the support, love, and prayers for Melanie and the family.
WE LOVE YOU, MEL! Hopefully you can feel that love all around you!
Melanie sounded pretty upbeat today. She was kind of tired and explained that she hasn't been sleeping very good at night. She is up all night with cold sweats. This Friday is day 29, and was going to be the big LP and bone marrow biopsy. I guess they are going to postpone it until next Friday, or until all of her counts are up. If they take the biopsy when her counts are down, they will most likely just have to do it again.
Melanie's aunt Lana came and visited her today. She brought some lunch, which is always so much better than hospital food. Mel said they had a nice visit. We are blessed with an amazing and supportive family! Cami mentioned the visitor she had yesterday, and I got some more details about it. Janet Blad, who is a mother of some of Melanie's students brought a lap blanket she had crocheted, and also a scarf for my mother. She also brought along a package from the Gunnell family that had a Christmas CD and something extra special. One of Mel's students named Avery Gunnell sent her nativity set down for Melanie to have. How sweet is that? Melanie has such amazing students and parents that she works with!
I wanted to mention a bit about what is going on up in Logan. My aunt Eva and Cami went over to my parent's house today and set up a Christmas tree and some decorations for my dad. Thank you, Eva! Also, Cami, Mike, Stephanie, and my dad are in the process of trying to pack up all of Melanie's things from her apartment and get them in storage or my parent's house. Since they are not being good about asking for help, I am asking for them. If you live in the area and would be willing to box some things up, or clean a little, or anything, it would be so appreciated! Everyone has been doing so much already, it is hard to ask, but I know they could really use the help.
Thank you, once again for all the support, love, and prayers for Melanie and the family.
WE LOVE YOU, MEL! Hopefully you can feel that love all around you!
Tuesday, December 8, 2009
Day 25
I talked with my mom very briefly today and I'm trying to remember all that we talked about...bits and pieces are coming to me...Melanie had a super rough night with little sleep for her and our mom. She was sweating really bad and shivering, at one point her body temp dropped to 94.5 and her blood pressure was low. The long night of course finally ended and a new day began. Melanie got her walking done in the morning. The 'wig lady' (how would you like to be called that) came by with wigs for Melanie to try on. My mom said that there were some red ones...funny! There was also a blond one which Mel thought made her look too much like Kelly Osbourne. I will be bringing her a wig down on Saturday which was donated by the friend of a dear friend of mine from Arizona. I think it will be a winner, it is close to Mel's hair color and a super cute cut...we'll see.
My mom told me about a special visit from a Providence mom...I wish I could remember the name. She brought some really neat things for Mel that brightened her day. Her children have been blessed to have Miss Melanie as their teacher. I will have to write more about their visit tomorrow after I talk to mom again.
Tomorrow's post should be a better one, I promise to be more prepared. :)
I love you lots and lots Mel!!!
My mom told me about a special visit from a Providence mom...I wish I could remember the name. She brought some really neat things for Mel that brightened her day. Her children have been blessed to have Miss Melanie as their teacher. I will have to write more about their visit tomorrow after I talk to mom again.
Tomorrow's post should be a better one, I promise to be more prepared. :)
I love you lots and lots Mel!!!
Monday, December 7, 2009
A Better Experience
Today Melanie had the Lumbar Puncture she missed on Friday. It was a much better experience for her. They did it on a different floor with a tilt table, which was a lot more comfortable. They also did conscious sedation. There were no tears this time! The chemo she received through her central line on Friday is causing all her levels to be low. She had no NU's today, which means No immunities. Her hematocrit was 22.7, which means transfusion. They gave her 2 units of blood. At 4:30, she started a fever again. This was kind of frustrating, because she thought this had finally past. The doctor thought she might be having some kind of reaction to the blood, because she also had some redness on her neck. So, they gave her some Tylenol and Benedryl. The fever went away and hopefully that was the culprit. They didn't find anything in any of the cultures to make them think she has an infection. They did some more cultures today, just to be sure.
Melanie is getting a little taste of what it is like for my mom as a diabetic. The Prednizone she takes effects her blood sugar. She has to prick her finger and have her blood checked a few times a day. Her sugar was up to 200 this evening, which means she will get a shot of insulin. It is different to hear HER say, "If I eat that, my blood sugar is going to go up."
Melanie has not been out walking the halls since last Thursday. With the fever, low blood levels, and fluctuating blood sugar, she has just not had the energy to do it. Hopefully, levels will start coming up, fever will go away, and she can feel a bit better.
Hang in there, Mel! We will pray extra hard for you this week!
Melanie is getting a little taste of what it is like for my mom as a diabetic. The Prednizone she takes effects her blood sugar. She has to prick her finger and have her blood checked a few times a day. Her sugar was up to 200 this evening, which means she will get a shot of insulin. It is different to hear HER say, "If I eat that, my blood sugar is going to go up."
Melanie has not been out walking the halls since last Thursday. With the fever, low blood levels, and fluctuating blood sugar, she has just not had the energy to do it. Hopefully, levels will start coming up, fever will go away, and she can feel a bit better.
Hang in there, Mel! We will pray extra hard for you this week!
Sunday, December 6, 2009
Some Words From Mother Balls
Hi
This is Mel waiting to be taken down for her lumbar puncture. She is holding a rock in her hand. She gave Kaden this "worry rock" a while back and Kaden brought it to the hospital and gave it to her...so sweet! My mom told me that she always knows when Mel is worried because she will have this rock in her hand.I want to say something about our mom. I often call her our "angel mother". She is always there for us and is so happy, fun and comforting. I know that she will be blessed for staying by Melanie's side through all of this. We love you mom!!
Saturday, December 5, 2009
A Special Visitor

Melanie was still running a fever today. They haven't found anything from the cultures yet. They took a sample to check for H1N1, but that could take a few days to get back. My mom said that the nurse explained it is good if they don't find anything. We don't want it to be an infection or virus of any kind. Hopefully it is just a neutropenia fever, which is simply caused by having low NU levels.
Despite an off and on fever, Melanie had a great day today. Her and Kaden had a very special visitor! Andy Williams, who is #77 on the ReAl soccer team shocked them with a visit. My mom said that both of their eyes were so big when he walked in the room. One of the nurses told him about Melanie and Kaden and what big ReAl fans they are. Andy's wife has AML. She had a cord transplant and was in Seattle for 5 months. She has to come into the hospital every week to get some platelets. Andy signed the pendent hanging on Mel's wall. They all talked about the soccer game and he mentioned that he would stop by again. COOL! When I talked with Kaden about it, he was grinning from ear to ear. That really made the day bright!
Kaden, Andy Williams, Mel. We'll have to take a picture next time he comes for a visit. This one is pretty darn blurry.Melanie also had a visit from her Principal, Curt Jenkins, and his wife Melanie. It is so nice of people to travel so far to see Melanie. One of her former student's mom stopped by and brought Melanie a special gift. The student's name is Carson. His sister passed away from a brain tumor, while he was in Mel's class. Melanie gave him a teddy bear to help him through the ordeal. In a note he sent to her today, he explained that he still sleeps with his teddy bear and he thought she needed something to comfort her as well. He had sent a big teddy bear for Melanie. What a sweet boy. Melanie was truly touched by his thoughtfulness.
I'm sure there is going to be a lot of fasting on Melanie's behalf tomorrow. May we just say Thank you, Thank you!
Friday, December 4, 2009
A Rough Day
Melanie's fever lasted through the night and most of the day. Her fever broke at one point, but was back when I last talked to my mom at about 5:30 this afternoon. The doctors decided to skip the lumbar puncture and just gave her chemo in her central line. She had a CT scan to check out her sinuses and a chest x-ray to look at her lungs. They are trying to determine if there is an infection somewhere. They took a culture last night, but my mom hadn't heard if it showed anything. Mel has been shivering a lot...thank goodness for those warmed hospital blankets. With her immune system being suppressed, it is really important that the doctors find the source of her fever, hopefully we will know more tomorrow. Keep on praying for her.
Thursday, December 3, 2009
Another Day
Today started out good. Melanie's blood counts were up, and she was able to go walking and do some leg exercises. Rocky, the PT, was happy when he showed up, because she had already accomplished what he was there for. Way to go Mel! The doctor talked to my mom a little more about the donor. He said that 4-5 years ago, it would have been hard to find a stranger who would be a perfect match. However, now they are able to get down to a molecular level, so a perfect stranger can be as good a match as a sibling. That is great!
At 6:30 tonight, Melanie started a fever. They said it is not uncommon for someone to get a fever, when they are having chemo. They did some cultures to make sure it is not an infection of any kind. They will know the results tomorrow. Melanie took some Tylenol, and the fever went down. Hopefully, it will stay down! Tomorrow she has another lumbar puncture. They are going to do conscious sedation, so we are praying it will be a better experience then the last few. They are also going to give her some fluid tonight so she will not be dehydrated like last time, and they will be able to get some spinal fluid easier.
Melanie's aunt Arlene and cousin Tricia came to visit her today. I'm sure it was a great visit. They are both such amazing people! It was when she had her fever, so no pictures where taken. They brought Mel a really cute, quilted bag that had a nativity scene on it. It was full of CD's, books, movies, and some chocolate cinnamon bears. Do you hear that Kim?! Maybe now she will share with you. :)
Good luck on the LP tomorrow, Melanie! Our thoughts and prayers will be for a quick and easy experience. LOVE YOU!!
Wednesday, December 2, 2009
Day 20
Mel had another tired day. Her red blood count was low and so she got a transfusion of two bags of blood. Hopefully by tomorrow she will feel more alive. I have a new appreciation for people who donate blood, what literal life savers!
Mel's good friend Suzanne spent a couple of hours with her today. She gave our mom a much needed break to shower and take care of some things. Suzanne brought Mel lunch from Kneader's along with several desserts, I can only imagine how yummy it must have been after weeks of hospital food. Mel and Suzanne had a nice time visiting.
Mel also got a phone call from a sweet little friend that she enjoyed a lot.
Not too much to report, just one day closer to the bone marrow check. :)
Mel's good friend Suzanne spent a couple of hours with her today. She gave our mom a much needed break to shower and take care of some things. Suzanne brought Mel lunch from Kneader's along with several desserts, I can only imagine how yummy it must have been after weeks of hospital food. Mel and Suzanne had a nice time visiting.
Mel also got a phone call from a sweet little friend that she enjoyed a lot.
Not too much to report, just one day closer to the bone marrow check. :)
Tuesday, December 1, 2009
Some bad news...some good news.
Mel had a hard time sleeping last night so she was really tired. The doctor visited with her today. We found out that none of us siblings are donor matches (that's the bad news). We are all half matches. We were all really bummed out about that. There are 4 donors in the national registry who are perfect matches, that is amazing! Who would have thought that a perfect stranger could be a match over a sibling. There are 2 international matches and two domestic matches. They are contacting the international donors first, I guess less red tape? We are all hoping that the donors will be able and willing to follow through. We will keep you posted. Mel received good news about her blood counts. Everything is up and she now has 100 Neutrophils, she need 500 to have the possibility of leaving the hospital for a couple of days. The doctor said that the levels don't usually come up this quickly...the power of prayer! Thank you everyone!
Mel had two visitor today. Our aunt Heidi visited a long with Shari Carling. Shari brought Mel a keyboard, a Reader's Digest Christmas Songbook and hymnal. Thank you so much!! This will be great therapy for Mel's soul. She has always used the piano as a way to escape. I know she is so appreciative and it will get lots of use.
Melanie has received lots of cards from members of her ward. We hang all of her cards up so she can have a reminder of all of the people who love her and are rooting for her. All of the prayers, thoughts, well wishes, cards and gifts means so much to all of us, thank you!
Mel wanted me to post these pictures from the last few days. The captions under the pics are from her.
One of my best friends Jen delivering all those wonderful hats, scarfs, bandanas, and Mary Tyler Moore DVD sets.
This is the hat Caesy - Jen's daughter picked out for me.
Shari Carling was my wonderful visitor today who brought me a keyboard and Reader's Digest Merry Christmas Songbook to help pass the time.
Mel had two visitor today. Our aunt Heidi visited a long with Shari Carling. Shari brought Mel a keyboard, a Reader's Digest Christmas Songbook and hymnal. Thank you so much!! This will be great therapy for Mel's soul. She has always used the piano as a way to escape. I know she is so appreciative and it will get lots of use.
Melanie has received lots of cards from members of her ward. We hang all of her cards up so she can have a reminder of all of the people who love her and are rooting for her. All of the prayers, thoughts, well wishes, cards and gifts means so much to all of us, thank you!
Mel wanted me to post these pictures from the last few days. The captions under the pics are from her.
One of my best friends Jen delivering all those wonderful hats, scarfs, bandanas, and Mary Tyler Moore DVD sets.
This is the hat Caesy - Jen's daughter picked out for me.
Shari Carling was my wonderful visitor today who brought me a keyboard and Reader's Digest Merry Christmas Songbook to help pass the time.
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