Hi everybody! It's Mom (Peggy),
We were supposed to do the blog yesterday, but we took a break as well as Mel's sisters. Sometimes a break is in order. Melanie did a lot of sleeping yesterday and I did a weeks worth of laundry as well as a bathroom cleaning. We have to be really careful to keep things sanitized and germ-free for Mel. We went to the clinic this morning at 10:40. Melanie had her blood draws, talked to the PA, Charlie, and then had a good talk with Dr. Asch. Melanie's counts have been climbing again. Her white blood count is at 3.1. Her hematocrit is 30.2. Her platelets are 60,000. Her neutrophils are 2.5. These numbers probably don't mean anything to a lot of you, but Dr. Asch was so excited! Melanie talked to her about going home to Hyde Park. Kaden is having a harder time leaving each Sunday night. It's been a long time since he's been with his mom for a long period of time. A thirteen year old needs his mother. Dr. Asch is having the PA check in for a place that can do her blood draws and home healthcare to provide supplies for her central line and any IV supplies she might need. The usual time to leave if there isn't any graft versus host disease is 100 days from transplant. That date would be May 17th. She is on one immunosuppressant, Tacrolimis. This can be tapered off when the time is right. It has to be checked often so this is one of the reasons for staying close. We'll be glad when she can stop some of this drug because it causes BAD tremor in her hands. Her writing is like an old woman. She hasn't been able to write any thank you cards for a long time. SORRY EVERYONE. Just know that all you've done and are doing is so appreciated by Melanie. She just can't reply right now. Tomorrow we go back to the Bone Marrow Clinic to have her Tacro level checked. Friday we go in again to have blood levels checked. Tuesday we go for a clinic visit with the doctor. We're hoping for permission for Melanie to go home for the garage sale on May 1st. She will have to wear her mask and gloves. She won't be able to stay for a long amount of time, but we're hoping she can make an appearance! She tires quickly and has to be careful with large crowds of people. It will be nice to be back in good ole Hyde Park. It might not be for good yet. She has to go to the clinic at least once a week. We just have to play the patience game. We're used to that. Time to go to bed.
Love to all of you,