What a long day. Good, but long. I have been so lucky to have Kim be my caregiver for the last two days. Mom needed a break. Kim was wonderful! Se helped with everything: laughed with me, made sure I had music playing all night long, gave me those special pats and rubs on the back or leg, made me eat, and celebrated with me when I didn't throw up for 2 mornings in a row. For now, the Leukemia morning sickness has left - I hope it stays that way.
Cancer cells in my blood are down to 2%. I don't know what is going on in my bone marrow or in my spinal fluid. They will both be checked again later. The main thing keeping me in the hospital is that I have 50 as opposed to 18,000 infection fighting whatever they ares. I don't know what they are called. Bottom line - please do not come visit if you think you are sick in any way!!!
I have had great nurses, great CNAs, a wonderful physical therapist (Andy aka Rocky), and a great team of doctors. Many have asked why I am not at the Huntsman Center. I am guessing it's because of insurance. All I know is that I am in very good hands right where I am.
Please keep Kaden in your prayers. It's always been just the two of us and I can tell he is struggling. Moving out of our apartment and in with grandpa (grandma is down here) is going to be tough. He is buddies with grandpa and I'm sure they will have great fun. It doesn't change the fact that his world has been rocked and is continuing to be rocked big time.
I can't focus anymore! I have to get back to the ReAL vs. Galaxy game. Love you
all!!! - Mel
ESPN has now lost its signal at the hospital so I figured I would add a little more. First of all, if the hair on your legs is growing long, it probably means your armpit hair is too. That was a disgusting surprise. Soon, Angie will bring me an electric shaver so I can shave again. I will never understand why my cousin Jen randomly decided to grow out her leg hair one year.
Most exciting is that my Moo Juice (really called TPN, just looks like a big bag of milk/cream) has been cut in half. YEAH!!! I have had a hard time eating for various reasons and so have had the pleasure of being fed via IV. My goal has been to get off the moo juice. The only way to do so is to eat more calories via the mouth. With a little help from protonix and finding relatively soft things to eat, I am half way there! Did I say YEAH!
Once again, love ya all - Mel